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‘A Living Hell’ – Charlie Bird Provides Update On ‘Nightmare’ Motor Neurone Disease

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Charlie Bird has actually supplied an update on his life with Motor Neurone Disease, explaining it as a ‘ordeal’.

The previous RTE reporter revealed his fight with Motor Neurone Disease in October 2021 and has actually been open about his journey with the disease since.

Over the last 2 years, Charlie has actually been marketing, raising awareness and fundraising for MND.

Charlie Bird Motor Neurone
Charlie Bird has actually supplied an update on his life with Motor Neurone Disease, explaining it as a ‘ordeal’. Pic Maxwells Dublin

Giving an insight into how he’s keeping as he continues his health fight, Charlie pledged to ‘continue to help raise awareness for various groups’ while he has ‘a single breath’ in his body.

‘For me what I am dealing with is a problem. I now understand that MND is going to impact all my limbs and there is absolutely nothing I can do about that. I can’t alter what is coming for me…

‘I likewise said when I got my medical diagnosis I didn’t wish to wind up in a wheelchair. But every day when I am out and about, I see individuals in wheelchairs, and I get guilty and upset at my preliminary response and what I said. There are great deals of beautiful individuals out there who need to live their lives in a wheelchair, and I now accept I might be among them quickly.

Charlie Bird throughout the Climb with Charlie at Croagh Patrick, Co Mayo. Pic: Michael McLaughlin/RollingNews.ie

‘In this life, none people understands what may be around the corner and I am confronting the reality of my scenario. But I do wish to apologise to everybody who remains in a wheelchair and to their households also,’ he informed RTÉ.

Charlie has actually been signed up with by his spouse Claire on the journey, who has actually supplied him with assistance and care over the previous 2 years.

‘I’ll always remember that day as long as I live. The word ‘terminal’ was the only word I heard and still to this day, I discover it tough to get my head around it. Charlie, nevertheless, has actually utilized his disease to raise funds and awareness for numerous charities (consisting of the Irish Motor Neurone Disease Association and Pieta House) and is continuing his work.

Over the last 2 years, Charlie has actually been marketing, raising awareness and fundraising for MND. Pic: Sam Boal/Rollingnews.ie

‘He never ever quits on assisting others. I am so happy with him. He has actually taught me, no matter what life tosses at you, all you require is decision and determination, and you can have a genuine effect on individuals’s lives. We might all learn a little from him.

‘What I have actually found out is not to panic however to attempt and get on top of the scenario as finest you can. I’m really protective of Charlie and there is absolutely nothing I wouldn’t provide for him. I have numerous titles now: carer, PA, the one in charge, the spouse… the list continues,’ she said.

Admitting that as time passes ‘the physical and psychological obstacles get more complex and harder’, Charlie assessed his ‘numerous dark days’.

‘As time passes, the physical and psychological obstacles get more complex and harder. “You ask how my psychological health is.

‘I remain in a method really lucky that I have incredible assistance from ideal throughout the nation. This incredible assistance is assisting me survive. Even so, every day I cry. It is among the negative effects of my MND. This is an ordeal. I am not the only one with a terminal disease, however what has actually occurred to me over the previous 2 years – and this seethes when I state it – is that some spirit has actually been assisting me.

‘In a method, I have actually won the lottery, and this spirit and the caring assistance many individuals has actually assisted me a lot to confront what is occurring to me. As I am composing this, I am bawling sobbing. But as I’ve said, I’m not the only individual dealing with the severe reality of a terminal disease. We need to all extend the hand of relationship to individuals who remain in dark locations,’ he said.

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